Rare Disease Day 2024


Let’s shine a light on the strength and resilience of those living with rare conditions.

New £14 million investment targets rare diseases 

A new platform bringing together UK strengths in rare diseases research to improve diagnosis and treatment through better understanding of the disease.  The platform will bring people together, link participants to resources and activities in the UK and internationally, and support projects that deliver advances in rare disease research.  The UK Rare Disease Research Platform […]