Rare Disease Day 2024
Let’s shine a light on the strength and resilience of those living with rare conditions.
Event: CILIAREN Node Workshop
Join us in Newcastle for a face to face meeting for the Renal Ciliopathies National Network (CILIAREN)
Rare Disease Research UK Annual Conference
The first Rare Disease Research UK annual conference will be taking place on 26th March 2024 at The Catalyst, Newcastle upon Tyne. More information coming soon!
New £14 million investment targets rare diseases
A new platform bringing together UK strengths in rare diseases research to improve diagnosis and treatment through better understanding of the disease. The platform will bring people together, link participants to resources and activities in the UK and internationally, and support projects that deliver advances in rare disease research. The UK Rare Disease Research Platform […]
