Purpose of Statement 

This disclaimer and privacy statement relates to the Rare Disease Research UK (RDRUK) website. 

Collection of Personal information 

Under the Data Protection Act, we have a duty to protect any information we collect from you. We do not pass on your details to any third party unless you give us permission to do so. 

Provision of personal information will be acknowledged as your acceptance of this statement and agreement to our collecting and use / disclose of your personal information only as described in this statement. 

If you do not agree to this statement, please do not provide your personal details to us. 

What is personal information? 

Personal information is information about an identifiable individual, as defined by applicable law. 

Collecting personal information 

We only collect and hold personal information provided by you. You may also elect to provide us with personal information if, for example, you: 

• Contact us via email 
• Contact us via an enquiry form 
• Sign up to a newsletter 
• Fill out a survey or other form with your personal information included 
• Request us to provide you with information 

In providing personal information you consent to the transfer of such personal information to, and the collection and processing of such information in, other countries or territories. Any such transfer and processing by us will be in accordance with this privacy statement. 

Disclosure of personal information 

We will never disclose your personal information unless instructed to do so by law enforcement, governmental or regulatory agencies, or other third party in order to comply with law or where we believe such action is necessary in order to comply with law or detect, protect or defend us and/or other third parties against error, negligence, breach of contract, theft, fraud and other illegal or harmful activity, to comply with our corporate policies, procedures, legal and contractual obligations. 

Disclaimer 

Our website and materials relating to our information, products and services (or to third party information, products and services), are provided ‘as is’, without any representation or endorsement made and without warranty of any kind, whether express or implied, including but not limited to the implied warranties of satisfactory quality, fitness for a particular purpose, non-infringement, compatibility, security and accuracy. 

We do not warrant that the functions contained in the material within in our websites will be uninterrupted or error free, that defects will be corrected, or that this site or the server that makes it available are free of viruses or represent the full functionality, accuracy, reliability of the materials. 

In no event will we be liable for any loss or damage including, without limitation, indirect or consequential loss or damage, or any loss or damages whatsoever arising from use or loss of use of, data or profits arising out of or in connection with the use of our websites. 

These terms and conditions shall be governed by and construed in accordance with the laws of England and Wales. Any dispute arising under these terms and conditions shall be subject to the exclusive jurisdiction of the courts of England and Wales. 

Links to external websites 

Links contained within our websites will lead to other websites which are not under our control. We are not responsible for the content of any linked site. Listing and linking should not be taken as an endorsement of any kind and we accept no liability in respect of the content. We cannot guarantee that these links will work all of the time and have no control over the availability of the linked pages. 

Virus protection 

We make every effort to check and test material at all stages of production. It is always wise for you to run an anti-virus program on all material downloaded from the Internet. We cannot accept any responsibility for any loss, disruption or damage to your data or your computer system which may occur whilst using material derived from our websites. 

Last updated: January 2024 

We may at any time revise these terms and conditions without notice. Please check regularly. Continued use of our websites after a change has been made is your acceptance of the change.