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Category: PPIE

Involvement by design: How to address structural and cultural barriers to PPIE in academic research

Genetic Alliance UK has published a new report, ‘Involvement by design’, developed in collaboration with Rare Disease Research UK and the LifeArc Translational Centres for Rare Disease. The report explores why patient and public involvement and engagement (PPIE) remains difficult todeliver meaningfully in academic research and draws on insights from researchers at different careerstages to […]