The RDR UK ELSI Node is pleased to invite researchers, healthcare professionals, policymakers, patient support groups and others from across the rare disease community to the 2nd ELSI Conference to share experiences, cases and insights on the Ethical, Legal and Social Issues (ELSI) surrounding rare conditions.
This free one-day conference will be held on 19 November 2026, and will explore ethical, legal and social issues surrounding rare disease research and clinical practice. The overarching theme of the conference will focus on mainstreaming ethics alongside genomics in rare disease research and clinical practice.
Check out the draft programme here.
