Held over 2 days, on 19th and 20th November 2025, this workshop was covened by 5 projects and initiatives operating at the cross-rare disease level in the UK.
The workshop united over 40 experts from academia, industry, patient organisations, regulatory bodies, the policy sphere and more to unite insights from the organising projects with perspectives and experience from the wider UK rare disease landscape.
Read the report from the workshop here.
